Update …  Riley has been making Great progress on the Trilogy Ventilator. On Monday May 20th his daytime settings were reduced to just CPAP. We have been able to leave the cuff down on the trach 24/7 for about the last week and a half but Now there is No PEEP ..  No Rate .. No Pressure Support .. Nothing but CPAP. He still has some support overnight with the vent but this is All Wonderful progress!
On Thursday May 16th Riley’s trach was able to be downsized. Prior to the downsizing there were many attempts to use a Passy-Muir Valve. This one-way valve attaches to the outside opening of the tracheostomy tube and allows air to pass into the trach, but not out through it. The valve opens when a person breathes in. When the person breathes out, the valve closes and air flows around the trach tube, up…